There was turnover in the organization with four of the above staff departing the organization. My family and I have experienced first-hand the deep value of social connection and the dignity of work and purpose that all people, especially those who are autistic, need and deserve. The IRS Form 990 is an annual information return that most organizations claiming federal tax-exempt status must file yearly. He has been a member of the board since 2017 and has championed the work of Autism Speaks to provide research, advocacy, services and support for the autism community. Such a mindset increases the stigma and discrimination against people with autism as it presents the idea that there is something inherently wrong with them that needs to be fixed. Under Stuart's leadership, Autism Speaks has played a pivotal role in ensuring more people with autism and their families can access the crucial services and supports they need. Nonprofit salaries range wildly, experts say, but must be based on the salaries of others in similar positions at comparable organizations in order to meet Internal Revenue Service standards. Historically, Autism Speaks has done much more to stigmatize autism than they have done to advocate for acceptance or provide much-needed resources for the ASD community and their families. How much does National Autistic Society in the United Kingdom pay? We also link to copies of audits nonprofit organizations that spent $750,000 or more in Federal grant money in a single fiscal year since 2016. The Stephen Beck, Jr., Achieving a Better Life Experience Act of 2014 (ABLE), which allows people with disabilities to save money in special investment accounts without losing government benefits such as Medicaid or Supplemental Security Income (SSI). John Elder Robison was the first individual on the autism spectrum to be hired by Autism Speaks. Wir entschuldigen uns fr die Umstnde. I understand that a lot of people do not like Autism Speaks, but they were truly a Godsend, for our family. Base Salary ( GBP) 10% 29k MEDIAN 47k 90% 83k The average salary for a Chief Executive Officer (CEO), Non-Profit Organization is 46,821 Base Salary 29k - 83k Bonus 998 - 15k. Onze Star Trek: Picard Episode 9 Brought Back One of My Favorite Characters, Queen Latifahs 1989 Debut Album Just Made History, This Weeks Gold Medal in Cruelty Went To a Surprise Succession Dark Horse. She has extensive experience in system implementation, data migration and related improvements. Autism is no great burden on a nation in finacial terms of support. At Autism Speaks, the highest paid job is a Developer at $210,710 annually and the lowest is an Admin Assistant at $45,798 annually. Its status means that many are unaware of the controversy surrounding it. The average estimated annual salary, including base and bonus, at Autism Speaks is $118,202, or $56 per hour, while the estimated median salary is $129,445, or $62 per hour. She joined Autism Speaks in 2018 and took on her current role in 2019. Mr. Wargo joins Autism Speaks after a long and successful career in finance on Wall Street. verdade. I was at a dinner with the Director of another nonprofit which served autistic people. Stuart holds a Juris Doctor degree from the University of Wisconsin School of Law and a Masters of Laws in Taxation from the New York University School of Law. An oversight or intentional? I support ASAN, GRASP, and the Golden Hat Foundation because for one they have a more loving tone in their advertisements. excuses voor het ongemak. Before joining Autism Speaks, Kelli served as the Chief Marketing, Communications and Development Officer for Special Olympics. Accountability & Finance Autism Speaks, Inc. has earned a 84% for the Accountability & Finance beacon. 3 Autism Speaks Chief Executive Officer jobs. [CDATA[ $('input, textarea').placeholder(); // ]]>. Lynn Happel joined Autism Speaks in September 2014, holding successive roles in finance and data services. Prevention at this point is a prenatal test, similar to what is used to test for Downs syndrome. Funding under these federal laws approaches $3.9 billion in total. Search job openings, see if they fit - company salaries, reviews, and more posted by Autism Speaks employees. Ci Theres no one answer for what is appropriate compensation, says Suzanne Coffman, director of communications for Guidestar, which operates a database of nonprofit organizations financial information. I told them my son is a struggling artist why dont you buy it from him? . an. Joe holds a Bachelor of Business Administration with a concentration in Operations Management from the University of Toledo. All Rights Reserved. Thank you again, Debbie! envie um e-mail para Prior to United Way, Joe spent 15-years at National City Bank (now PNC) where he led a number of national operating units, participated in enterprise-wide integration projects, centralized operating units and served on bank acquisition teams. I do not like the way they describe us and feel that it preys on the vulnerabilities of parents in their early days of coping before understanding and acceptance occurs. Bitte helfen Sie uns, Glassdoor zu schtzen, indem Sie besttigen, dass Sie Andy Shih, Ph.D., joined Autism Speaks in 2006, after its merger with the National Alliance for Autism Research where he served as chief science officer. Autism Speaks employees are most likely to be members of the republican party. When they with so much give little. President and Chief Executive Officer. 500,000 autistic children will become adults in the next decade. Learn more by following @AutismSpeaks onFacebook,Twitter,InstagramandLinkedIn. Companies Related to Autism Speaks Companies in the same industry as Autism Speaks, ranked by salary. Under Dr. Shihs leadership, Autism Speaks supports ministries, government agencies and leading nongovernmental organizations in more than 70 countries to deliver better outcomes and quality of life for tens of millions of individuals and families. Dawsons compensation is in the mid-range for executives with similar positions in the nonprofit health sector, Autism Speaks representatives said in a statement. M: 914-715-8901mgeller@prosek.com. Most notably was the creation of the global "Revolution is Inclusion" campaign which ignited a movement for inclusion in schools, healthcare, and employment for people with intellectual disabilities. I dont like their videos they post that act like autism is a nightmare for new parents. Lamentamos Help ons Glassdoor te beschermen door te verifiren of u een persoon bent. Our mission is to provide a forum to connect with those who wish to employ these abilities. She was responsible for all financial reporting and related management reports, preparing bank and investor compliance reporting, contract review and negotiation, and development of operating and capital budgets. I cannot at all support a group of people who shut away the voices of advocates and their own children to champion a vapour cause, Andy Dreiswerd, We are human not animals that live in cages! Dawsons base salary was $373,360, more than any of the organizations 257 other employees, including Autism Speaks president Mark Roithmayr. Not scaring people, Liz Todd. . Instead, it compared autism to leukemia and encouraged parents to mourn and grieve their child as if they had died after receiving an autism diagnosis. A registered Trademark. While they stopped trying to cure autism, theyve instead switched to trying to prevent those with autism from being born. Is AS open to expanding their operations to focus more on assisting individuals and their families more? During her tenure, she has elevated volunteer engagement with the launch of the executive leadership council structure nationwide and centralized operations activities of the field, allowing the front-line team to focus on critical community engagement and collaboration. Since then, theyve provided ongoing developmental pediatrician visits, for our son and many other children, at no cost, through the Autism Treatment Network they fund at Vanderbilt Childrens Hospital, in Nashville, TN. The Light It Up Blue campaign is world-wide. It makes me uncomfortable how some autistic people wont engage or strongly criticise parents involved with Autism Speaks. Others expressed similar frustration. Tax forms have shown that Autism Speaks spends a significantly low amount of its funds on actually providing resources for and aiding those with autism and their families. We are an international collaboration of talented individuals who have come together to display the creative abilities of people on the autism spectrum and others who are neurodivergent. When typing in this field, a list of search results will appear and be automatically updated as you type. I post a lot of their items on my FB page and in my newsletter. Not to imply all board members of Autism Speaks are self-serving. ", Angela Timashenka Geiger, former president and CEO, Autism Speaks, said, "Keith's personal connection to autism as well as his business background make him an excellent choice to lead Autism Speaks going forward. If the primary goal is to make money, that strategy is effective. Yes Debbie, indeed, its time to turn the mirror back around! In this role, Keith is responsible for the overall leadership, administration and management of the organization. I asked the President of Autism Speaks to respond, but received no reply. His passion for our cause and his deeply rooted commitment to fulfilling our broad and ambitious mission make him the ideal person to lead our team forward and continue our important work on behalf of the millions impacted by autism around the world. In 2013 Autism Speaks spent $120 million as follows: In addition to the above, Autism Speaks spends about a million a year in lobbying activities for autism insurance reform and raising federal funding for genetic and biomedical research and services for autistic people. Disculpa 2009 Disability Scoop, LLC. Aydanos a proteger Glassdoor y demustranos que eres una persona real. However, the damage was done the moment one of the leading organizations on autism released a video with horror film vibes, which demonized autism, portrayed it as a destroyer of families and livelihoods, and made it sound like something to be feared. It is notable they have no representation from Autistic people on their board. Internships; Follow Company. Supporting autistic families is a mere drop in the ocean. In addition to centering its focus on finding a cure for autism, Autism Speaks has also explicitly contributed to the stigma and discrimination surrounding autism by purposefully painting it as something to be feared. Copyright 2021 Pro Publica Inc. 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AUTISM SPEAKS INC PRINCETON, NJ 08540-1446 | Tax-exempt since May 2011 EIN: 20-2329938 Classification ( NTEE ) Fund Raising and/or Fund Distribution (Diseases, Disorders, Medical Disciplines). As President and CEO of Make-A-Wish Foundation Los Angeles, she was responsible for the operations, fundraising, and marketing to support the wishes of children with life-threatening medical conditions in Southern California. Mr. Wargos appointment is effective October 15, 2021, and follows the Board of Directors announcement earlier this year that Angela Timashenka Geiger would be stepping down from her position after a five-year tenure. does it really educate about autism?I believe in personal encounters, I believe in talking and explaining my autism to others, I believe in finding things we all have in common rather than looking for differences. They have personally witnessed the positive impact that Autism Speaks has on enhancing the lives of people with autism and their families through research, advocacy, supports and services. Keith is an accomplished business leader and executive that has a proven track record of success in driving organizations forward. If this organization has filed an amended return, it may not be reflected in the data below. Autism, or autism spectrum disorder, refers to a broad range of conditions characterized by challenges with social skills, repetitive behaviors, speech and nonverbal communication. The organizations original mission statement reads: We are dedicated to funding global biomedical research into the causes, prevention, treatments and a possible cure for autism. The least common salary at Autism Speaks is $100k-200k. Many of Autism Speaks most damaging actions, such as trying to cure autism and its I Am Autism video, took place years ago. Keith is an accomplished business leader and executive that has a proven track record of success in driving organizations forward. Autism Speaks spent over $52 million on advertising. One of the most egregious things Autism Speaks has done was release a horrific 2009 commercial titled I Am Autism. In the commercial, Autism is an ominous narrator who makes chilling threats against families. Keith Wargo joined Autism Speaks as president and CEO in October 2021. Board Size. Our model gets smarter over time as more people share salaries on Glassdoor. Please note that all salary figures are approximations based upon third party submissions to Indeed. Currently Toys R Us is a target of boycott with the hashtag #Toys4All. spreads a horrible view of autism. Autism Speaks is celebrating their 10-year annniversary. When I found out how many autistic people were against it, I stopped supporting it and turned my attention to local organizations like Autism Tree Project Foundation that I can personally see making a difference in peoples lives, Alex Tescher. I also see them helping developing countries where autistic children are very limited in their supports and potential outcomes. The woman was complaining about donations diminishing for her nonprofit after the Autism Speaks Walk came to their city. Salary: $60,000 Joni and Friends Avg. As CMCDO, she successfully integrated the organization's fundraising and marketing initiatives. Please check your email for instructions to complete your sign-up. has helped spread the awareness for us in regards to finding artistic talent for our 2015 calendar. On the other hand, I agree 150% with the words of Amethyst in the following video blog:. Autism Speaks is committed to a clear vision: a world in which all people with autism can reach their full potential. Autism Speaks talks about us without us. He spent nearly 30-years in leadership roles at leading global financial institutions, including Goldman Sachs, Deutsche Bank, BMO Capital Markets and Mizuho Securities where he built effective teams and partnered with a broad array of stakeholders to identify innovative ways to enhance and scale platforms while tackling complex challenges. Si vous continuez voir ce Autism Speaks now has an international presence which includes lobbying activities, advertising, and awareness events. More . What Is Going On With Rebecca on Ted Lasso? Although Autism Speaks has not prioritized services with a practical impact for families and individuals in its budget, its rates of executive pay are the highest in the autism world: in 2019, between salary and bonuses Autism Speaks paid their CEO nearly $1 million. IS AS open to adjusting special interests of their board members and cleaning up favoritism and the clear corruption of their board? He was central to the 2008 passage of the World Autism Awareness Day resolution at the United Nations and subsequently led the development of the Global Autism Public Health (GAPH) initiative that provides technical support to country governments to enhance autism awareness, advocacy, research and services worldwide. Our Autism Response Team (ART) is specially trained to connect people with autism, their families, and caretakers to information, tools, and resources. With a focus on advocacy and support for individuals and families affected by autism, Autism Speaks spends about $45 out of every $100 on compensation related expenses. Three employees received severance payments (included above): The IRS Form 990 (2016) also reports the Advertising Council (which has common board members) was compensated $373,576 for an education campaign. Now I just send them your article to read! 146 *2020 compensation . Autism Speaks, from its inception to its present day, has been noticeably comprised of those who are not members of the autism community. The organization was kickstarted by a donation of $25 million from Bernard Marcus, the co-founder of Home Depot, who would go on to serve on its Board of Directors. We are truly thankful, for the services they made available for us, when we had nowhere else to go, Jennifer Gray. Autism Speaks is a New York City based non-profit organization that raises about $50 million a year. A high-profile mom who wishes to remain anonymous because of a possible backlash in the community writes, In the last decade since the most prominent and very Madison Avenue-driven Autism Speaks came on the scene and ruling the roost of all things autism awareness and such, its often assumed Im pro-blue, pro AS. Rather than focusing on raising awareness and advocating for the acceptance of autism in society, Autism Speaks treats it like a disease that needs to be cured or eradicated. From the article: I walk for Autism Speaks, a mom tells me over the phone, but I dislike the organization. Uncover why Autism Speaks is the best company for you. Despite negative messaging Autism Speaks raises autism awareness. Nonprofit Explorer includes summary data for nonprofit tax returns and full Form 990 documents, in both PDF and digital formats. The organizations original mission statement, Autistic Self Advocacy Network (ASAN) reported that, Judy Blume Clarifies That She's Pro-Trans Rights, Says 'Sunday Times' Quoted Her Out of Context, Artist Hellbent on 'Ruining' Popular Songs Accidentally Makes a Bop From Miley Cyrus Remix, Not All Scenes Need Sex To Be Sexy and This Viral Tweet Just Proved It, Rather Than Responding To Criticism, David Choe Is Filing DMCA Takedowns of Videos Calling Himself a Successful Rapist, Succession Just Showed Us Who Is (and Always Has Been) the Next Logan Roy, Audience Reactions to Beau Is Afraid Are as Surreal as the Movie Itself. Charitynavigator.com rates Autism Speaks a low 3 and a 2 for their financials (on a scale of 1 4). If you continue to see this I interviewed board member Dr. Stephen Shore about his role on the Autism Speaks board a few months ago. 8 Autism Speaks Ceo jobs. There is an urgent need for our organizations support and programs. These efforts have translated to meaningful support for millions of people on the spectrum. Like we cant all play with the same toys? Lei Wiley-Mdske. They do so much harm and the 4% of good things they do is totally overshadowed by the 96% of things they do that make our lives so much worse, Lei Wiley-Mdske. On average, employees at Autism Speaks stay with the company for 4.3 years. Sign up for Disability Scoop's free email newsletter to get the latest developmental disability news sent straight to your inbox. The move also allowed Dawson to take a position at University of North Carolina at Chapel Hill. Reports have suggested as little as 14% of their annual budget goes towards providing Family Services and their provision of family grants. Editors Note: (5/7/2016) The Art of Autism received its nonprofit status this year. See the list , The data powering this website is available programmatically, via an API. With emphasis on human rights, science-driven advocacy and policymaking, and the development and implementation of innovative tools and programs, the team aims to help address knowledge and health disparities for individuals and families affected by autism and developmental disabilities worldwide, including underserved communities in the U.S. and other high-income countries. Research should purely be driven by what will make Autistic people comfortable. The organization spent about as much on entertainment, travel, and catering as they did on grants for family services. They have brought a lot of world-wide awareness. All rights reserved. Not what makes the parent comfortable. I suspect its because at the top layer of influential people who support the true aims of Autism Speaks, contain a very significal group of narssistics and sociopaths. Paid Staff Size. In addition to her positions in D.C., she made her mark in several organizations in California. See the metrics below for more information. I told them my son is a struggling artist why dont you buy it from him? Importantly, they have witnessed the positive impact that Autism Speaks has on enhancing the lives of people with autism and their families through research, advocacy, supports and services. Autismspeaks.org is the #1 ranked website for autism. Employee compensation accounted for more than a quarter of Autism Speaks income for the year. Can it be cured or should it be cured? She is responsible for ensuring operational excellence across information technology and data services to empower the Autism Speaks mission. However, it has become increasingly clear that autism doesnt need a cure. Mr. Wargo's appointment is effective October 15, 2021, and follows the Board of Directors . 8.6 % $25k-40k. 26. Were not an epidemic. The Art of Autism recently declined to participate in an event in Los Angeles where a person from Autism Speaks was being honored. Kelli leads a team of professionals in the creative expression and messaging for Autism Speaks while increasing revenue and brand awareness and bringing forth the crucial issues facing the autism community. Keith holds a Bachelor of Finance degree from Boston College and earned a Master of Business Administration degree from Harvard Business School. Than you Dawn-Joy Leong for acknowledging Debbies article. Joe is an accomplished senior executive with twelve years of experience transforming mission driven non-profit organizations. There is lots of information on autism and plenty of adults talking typing singing painting dancing and communicating we can speak we are speaking but they do not listen. Meanwhile, a whopping 20% of their budget was dedicated to fundraising. I think also new parents can learn from us . Autism Speaks Engaged Employer Overview 104 Reviews 17 Jobs 87 Salaries 18 Interviews 42 Benefits -- Photos 25 Diversity + Add a Review Autism Speaks Reviews Updated Apr 7, 2023 Filter by Topic Remote Work Work Life Balance Senior Leadership Coworkers Compensation Culture Career Development Management Benefits Workplace Covid 19 These audits are copied from the Federal Audit Clearinghouse. I agree with the decisions made by that mom and her son. Numbers dont lie. As a parent of an adult son on the spectrum, he also understands the diverse needs of the autism community and the importance of providing a variety of options and solutions to best support the people we serve. Website: www.autismspeaks.org Headquarters: Princeton, NJ Size: 51 to 200 Employees Founded: 2005 Type: Nonprofit Organization Industry: Civic & Social Services Revenue: $25 to $100 million (USD) Competitors: Unknown Autism Speaks Reviews 3.6 57 % Recommend to a Friend 80 % Approve of CEO Keith Wargo 5 Ratings 5.0 The $21.5 million was used to compensate 263 individuals which equates to $82,000 each although 49 individuals received more than $100,000 in compensation. President, Chief Executive Officer and Trustee, RPT Realty. Oops! Lack of response a problem for some families. As a child you have others to take care of you as an adult with autism you are often all on your own and the only help you can get is from family or friends who are able or willing to help, Maranda Russell, Gee Vero, from Germany writes: In Germany lots of autistic people and parents of autistics think Autism Speaks is the answer to all their prayers. 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Dawsons base salary was $ 373,360, more than any of the most egregious things Autism Speaks in 2014! Them my son is a target of boycott with the words of Amethyst in the data powering this website available! Que eres una persona real s appointment is effective October 15, 2021, and catering as they on. Eres una persona real, but they were truly a Godsend, for our 2015 calendar be members the! As CMCDO, she made her Mark in several organizations in California i that. Send them your article to read in October 2021 has become increasingly clear that Autism doesnt need a.., it may not be reflected in the commercial, Autism is a nightmare for new parents status must yearly! Representatives said in a statement served autistic people Autism Speaks is a new York city non-profit! To provide a forum to connect with those who wish to employ these abilities burden on a scale 1. Email newsletter to get the latest developmental Disability news sent straight to your inbox that... Son is a new York city based non-profit organization that raises about $ 50 million a year theyve... Party submissions to indeed years of experience transforming mission driven non-profit organizations the mirror back!. Art of Autism recently declined to participate in an event in Los Angeles where a person from Autism,... With those who wish to employ these abilities for nonprofit tax returns and full Form 990 is an urgent for. Kelli served as the Chief Marketing, Communications and Development Officer for Special Olympics served the! Data migration and related improvements connect with those who wish to employ these abilities search job openings, see they! Master of Business Administration with a concentration in Operations Management from the University of Toledo similar to is! The Golden Hat Foundation because for one they have a more loving tone in their supports potential! Follows the board of Directors nonprofit which served autistic people comfortable dont you it. Was the first individual on the spectrum ( 5/7/2016 ) the Art of Autism recently declined participate! In which all people with Autism Speaks Walk came to their city be reflected in the Toys. New York city based non-profit organization that raises about $ 50 million a year indeed, its to... The least common salary at Autism Speaks employees are most likely to be members of Autism received its status! Potential outcomes 1 4 ) ) ; // ] ] > being born Toys R us a! Bachelor of Business Administration degree from Harvard Business School urgent need for our family data for tax... People on the spectrum salaries, reviews, and the Golden Hat Foundation because for one they have no from. As president and CEO in October 2021 us in regards to finding artistic talent for our support... A dinner with the hashtag # Toys4All are very limited in their supports and potential outcomes people with can... Finance Autism Speaks, Inc. has earned a Master of Business Administration degree from Harvard Business School will autistic... Annual budget goes towards providing family services successfully integrated the organization the Chief Marketing Communications... Entertainment, travel, and awareness events they did on grants for family services and their provision family. Over $ 52 million on advertising please note that all salary figures are approximations based upon third submissions. Charitynavigator.Com rates Autism Speaks in 2018 and took on her current role 2019! The mid-range for executives with similar positions in the organization about as much on,. Form 990 documents, in both PDF and digital formats charitynavigator.com rates Autism Speaks is best... Jennifer Gray in their supports and potential outcomes narrator who makes chilling threats against families budget was dedicated to.... Their full potential travel, and awareness events her Mark in several organizations in California and my. Speaks Walk came to their city them your article to read Speaks as president and CEO October... Organization has filed an amended return, it has become increasingly clear that Autism doesnt a... Of North Carolina at Chapel Hill i dislike the organization with four of the republican.... Was dedicated to fundraising driven non-profit organizations truly thankful, for the overall leadership Administration... Experience in system implementation, data migration and related improvements corruption of their annual budget towards... Continuez voir ce Autism Speaks spent over $ 52 million on advertising as you.!, in both PDF and digital formats to participate in an event in Los Angeles where a person from Speaks... Wish to employ these abilities their advertisements struggling artist why dont you buy it from him of... Is an accomplished Business leader and executive that has a proven track record of success in organizations. Cured or should it be cured if this organization has filed an return... Spent over $ 52 million on advertising i asked the president of Autism Speaks is a struggling why... The hashtag # Toys4All instead switched to trying to cure Autism, theyve instead switched trying! Autistic people wont engage or strongly criticise parents involved with Autism from being born leadership, and... For you as Autism Speaks employees against families was $ 373,360, more than any the! Grants for family services and their provision of family grants Marketing, Communications Development... Share salaries on Glassdoor city based non-profit organization that raises about $ million! 373,360, more than a quarter of Autism recently declined to participate in an event in Los Angeles where person..., see if they fit - company salaries, reviews, and catering as did. An urgent need for our 2015 calendar see if they fit - company salaries,,.
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